Wednesday, June 20, 2012

Update on Diet

I'm still only increasing my intake of millet, lentils and trying to remember to eat the apricot kernels.  I made "flat bread" but it turned out more like a pancake.  Next time I might try to not put in baking powder so it doesn't rise.  What I was hoping for was something more like a tortilla or crepe.  Maybe I should just make the batter thinner. The recipe called for it to be like pancake batter, and I had to double the liquid amount to reach that point.

I've been having lentils in my noodles.  I usually take a quarter cup dried lentils in boiling water to cover and then drain.  I don't usually spice them.  I've also heard that brown rice is good for you, so I started having brown Basmati rice for breakfast.  Not bad.  I might have to find some ways to dress it up a bit.

I have an appointment today where I'm supposed to get my Herceptin and Zometa.  The last time I got Herceptin (and Benidryl in a pill form) by the time I walked out (after the infusion) my speech was slurred.  I felt like my tongue was thick.  They have decided it was an allergic reaction to the Herceptin, and want to give me drip Benidryl.  You know what?  I'm going to listen to my body and consider it poison.  I'm going to tell them that since I almost went into anaphylactic shock with the last treatment, I'm not taking anymore Herceptin.  I'll take the shot hormone blocker and the Zometa (calcium blocker) but no more Herceptin.  Last time I only lasted about 10 months (it's hard to keep track because the time was split in half).  I remember my oncologist telling me he was stopping something like 3 treatments early because it was causing heart problems.  How can something that causes heart problems be good for me?  It's like chemo...shooting a cockroach with a shotgun and hoping you kill it. 

I haven't gotten my book yet, but hopefully that will come today and I can bring it with me to the doctor's appointment to start reading.  If I only get the Zometa, the infusion will only last 30 minutes instead of an hour.  But then there's the lab work and waiting for the results of the lab work, then waiting to get hooked up.  I'm not sure if I'm scheduled for the shot or not.

I've put this off a whole week (actually a bit over, but a week would be from the last one).  I think I used allergies as an excuse because I'm really afraid to get the Herceptin again, since my allergic reactions are escalating.  I had started out realizing it was the Benidryl that made me feel so bad, so I stopped taking it.  Then I got a treatment that caused me to itch all over when I got home.  So we started with the Benidryl again.  I'm afraid it will escalate even more and I don't want them breaking out the Epi-pen, or having to take me to the ER right next door that doesn't take my insurance (if they would have to admit me).  That would be ALL I need, having to pay off a hospital stay on payments because my health insurance (Tricare Prime) isn't accepted by that hospital.

We shall see how things go today when I tell them I'm making an informed decision to not take Herceptin any longer.  I'm not scheduled to see the doctor until July 3rd.

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